Tuesday, July 23, 2013

Feeding Difficulties Return

I am a bit miffed at how things can change so quickly.  After Joy returned from completing the Spectrum feeding program, we were amazed at how enthusiastic and determined she was to eat.  She showed hunger signs (fussiness and crying) and drank her formula (not a lot but a vast improvement from before) and kept eating her puree foods with fervor and zeal.    

Fast forward a month, she is now sucking on her thumb and turning away from food in the highchair. She has the same scared/confused look when we approach her with the spoon. We have to give her distractions such as toys and jar lids just to get her started.  Once she's engaged with these things, she opens her mouth but only until a point.  She is also drinking a lot less formula than before (~40-50% less).  The past several days we have seen her gag/choke on the same food she ate during the program. What happened?!?!?  

It has been a very frustrating several weeks for us.  We feel like she has regressed a lot and we aren't sure what to do.  Do we stop feeding her on a schedule (every 4 hours) and just let her get hungry again?  We have a scheduled call with Jennifer Berry (Spectrum feeding therapist) tomorrow but I'm afraid she is going to tell us to just hang in there.  I feel like with each passing day, Joy is getting worse and the stress level continues to rise.
   
Please pray for us as we continue to struggle through this together.  


2 comments:

  1. Thomas, I'm so sorry to hear that Joy hasn't been doing well this past week :(. I can't imagine how stressed you and Selena may be. I'm praying for your family!!

    Keep us updated :)

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  2. :( praying for Joy!!

    ReplyDelete