Tuesday, November 5, 2013

Growing Personality, Eating and Food allergies, Another Endoscopy

It's been a while!  Here's an update on Joy...

Growing Personality.  Joy is a funny girl. Every morning I bring her downstairs to play and she immediately grabs her stuffed animals and begins to "purr".  She LOVES soft things like blankets, clothing, toys, etc.

When I return home from work, she immediately crawls like there is no tomorrow to me.  Sometimes I can't get to her fast enough and then she starts to whine and cry until I pick her up.  No wonder people say she has me wrapped around her little finger.


Joy also crawls normally now (no longer in the military) and can cruise on our furniture very well.  She still hasn't tried to stand up or walk but the physical therapist is impressed by the amount of progress.  We hope Joy will be able to walk before baby #2 arrives in late January.

Food allergies.  After Joy was sick with roseola, she started eating very well for several days.  Maybe her body was telling her she needed to eat.  Then we resumed our food challenges with soy sauce, soy beans/tofu, coconut milk, tomato sauce, and eggs.  We tried each food item for about a week and then moved on to another food.  We constantly checked for signs of allergic reactions but she didn't vomit (gagged a bit more than normal), didn't break out in hives on her face or get puffy lips/eyes, but she DID have occasionally have spots of itchy/redness behind or in her ears, back of her neck, or sometimes on her back.  But it was very mild and didn't seem to bother her that much.  It's been so difficult to determine what exactly she's allergic to so we're taking Joy back to the allergist for another round of allergy testing.  Could she be intolerant as opposed to allergic?
 
Difficulty with Meals.  As time as progressed with the food challenges, she has progressively become worse as an eater in terms of volume.  She still only drinks 7-9oz of formula/days and there are meals where she will eat a few pieces of food and then toss the food off the high chair, suck her thumb and refuse to eat again.  Teething?  Picky?  When she refuses, we try to find something she is willing to eat, including junk food (e.g. french fries), fresh and dried fruits, or whatever we are eating as long as she's not allergic to it.  We have noticed that she does eat better when we're out at a restaurant (distracted?). 
  
At this point, we are now concerned that she hasn't gained any weight since July and she has a lot more bad meals than good ones.  For breakfast, we stopped giving purees for a while and then went back to it only to then stop again.  For some meals, she will try to escape the high chair by standing up which is a major safety risk.  So she's either one of the most pickiest babies on the planet or there is something else going on medically that we haven't identified. It has been stressful trying to feed Joy for Selena, my mom and me.  But either way, I'm not going to culinary school to learn how to cook gourmet baby food. 



Next Steps: Given her persistent difficulty with feeding, we have been in touch with our pediatrician and the doctors at Children's to perform a second endoscopy.  We need to rule out eosinophilic esophaghitis, which can cause kids to stop eating if they repeatedly have allergic reactions to a food.  So please continue to pray for Joy as we try to figure all of this out.

Tuesday, October 29, 2013

Happy Halloween!

I took Joy to the Kentlands treat or treat event last Saturday.  I figured that it would be a bit late for her to go out on Halloween since she sleeps early around 7:30pm. Since Selena works on Saturdays, my mom and I took her to various shops in the Kentlands area and Joy collected all sorts of candy and toys.  It was cold but thankfully her mouse outfit was extra cushy and warm.  Too bad Joy was completely oblivious (as you can tell in the photo) but overall it was a nice experience worth remembering. 

Happy Halloween!




Thursday, October 24, 2013

Delirious Joy

So what happens when a 1 year old stays up WAY past her bedtime?  Exhibit A...you get a delirious Joy who can't stop laughing... 


Monday, October 21, 2013

Penn State Pride

My wife went to Penn State and we always battle about where Joy will end up going to college.  But I thought this morning it would be nice for Joy to experience her mom's college pride. 

"We are Penn State!"

Tuesday, October 15, 2013

While I've been furloughed

Parents beware! When your kids get sick, you also get sick...sick and tired of them that is! With the government shutdown, I anticipated long naps at home and catching up on my tv shows and movies. But when Joy became sick with a high fever (infected with roseola) AND decided that she wanted a few more teeth, I lost my golden opportunity for relaxation.  Such is life...

Joy loves to read advertisements

Joy eating cheerios while cruising

Joy standing up at the safety gate = come play with me!

Red bumps and rash on her entire body

This was taken around 5am...don't know how she has the energy to play at this hour

Tuesday, October 8, 2013